Orphan Drugs

29Mar 2016

The growing cost of discovery and development of orphan drugs is having an overall impact on the patient access to orphan medicines. Orphan drugs, which are usually not covered by insurance systems are inaccessible to patients due to their high cost, and even when they are covered, patient cost-sharing (through co-payments or coinsurance) can still […]

29Feb 2016

On the eve of “World Rare Disease Day” today, February 29, 2016 (the rarest day of the year), I planned to post a two series blog post on “Orphan Drug Pricing and Reimbursement” During 1970, individual patients and volunteer healthcare organizations began lobbying for legislation to encourage the development of therapies for rare diseases.  The […]