Capabilities / Social Media Listening & Patient Voice
For Medical Affairs, RWE, Patient Advocacy & Brand teams

The most honest evidence about your disease area is already being spoken — we help you hear it

Patients and caregivers describe symptoms, treatment experiences, side effects and unmet needs every day on public forums, social platforms and communities. We help teams decide which questions this evidence can credibly answer, then run protocol-driven listening studies that convert unstructured conversation into structured, citable insight — and into recommendations for medical, access and brand strategy.

Patient · Caregiver
Two voices, one method
Protocol-driven
Documented search & inclusion criteria
AI + human
Classification with expert validation
Where we start

Strategic advisory

Before any deliverable is scoped, our consultants work with your leadership to answer the questions that determine whether the evidence will change a decision.

  • Listening strategy: which questions patient and HCP voice can answer for your asset — and which need other evidence
  • Patient-centricity and unmet-need narratives for value dossiers, PRO strategy and patient-advocacy engagement
  • Launch, label-change and safety-communication monitoring plans with signal thresholds
Then we deliver

Evidence generation capabilities

Patient Voice Studies

Protocol-driven analysis of patient conversations on burden, journey, adherence and treatment experience — publication-ready.

Caregiver & Community Voice

Perspectives of caregivers, advocacy groups and patient communities on burden, support needs and care pathways.

Sentiment & Theme Tracking

Longitudinal tracking of sentiment and themes around launches, competitors and safety events, with emerging-signal alerts.

Unmet-Need & Patient-Journey Mapping

Qualitative and quantitative mapping of the lived treatment journey to inform PRO selection and value narratives.

Digital Pharmacovigilance Support

Detection and characterisation of adverse-event mentions in public conversations to complement PV processes.

Publications from Listening Data

Manuscripts, congress abstracts and posters built on social-listening evidence, to GPP and ethical-use standards.

What we listen for

Patient voice — real-world evidence hiding in plain sight

Millions of patients and caregivers describe symptoms, treatment experiences, side effects and unmet needs every day on public forums, social platforms, patient communities and review sites. We turn that unstructured conversation into structured, citable real-world insight — ethically, and to a documented methodology.

Sources we listen to
X / TwitterReddit & disease forumsPatient community platformsFacebook groups (public)YouTube & podcastsPhysician networks & blogsProduct & pharmacy reviewsNews & conference chatter

Patient voice

Burden of disease in patients' own words, the treatment journey, adherence barriers, side-effect experience and what 'a good outcome' actually means to them — evidence that strengthens PRO strategy, value dossiers and unmet-need arguments.

Caregiver & community voice

How caregivers and advocacy communities describe support needs, care pathways and the impact on daily life — evidence that broadens the humanistic-burden argument.

Signal & sentiment tracking

Longitudinal sentiment and theme tracking around launches, label changes, safety communications and competitor events, with emerging-signal alerts for medical and pharmacovigilance teams.

How we do it
  1. 01Protocol-driven search strategy and inclusion criteria
  2. 02De-identification and ethical-use safeguards
  3. 03AI-assisted classification and theme extraction with human validation
  4. 04Quantified themes, sentiment and representative verbatims
  5. 05Triangulation with literature, claims or survey data where available
What you receive
  • Patient-journey and unmet-need report
  • HCP perception landscape
  • Sentiment & theme dashboards
  • Publication-ready manuscript or congress abstract
  • Strategic recommendations for medical, access or brand teams
Where it adds value

AI-assisted strategic analysis

Not every project needs it. For the engagements below, our consultants draw on in-house AI tools to analyse faster and more consistently — and you receive the insight as a strategic report with recommendations.

Patient voice analysis

For questions where the patient perspective is the missing evidence, we use in-house AI tools to synthesise real-world patient conversations into structured, citable insight.

Patient-journey theme mapping

For value narratives and PRO strategy, we map recurring journey themes and unmet needs across thousands of patient posts, with expert validation of every theme.

Frequently asked

Questions clients ask about Social Media Listening & Patient Voice

Patient-voice evidence is typically triangulated with our Real World Evidence Strategy, HCP Voice & Intelligence and Medical Affairs Strategy capabilities.

Is social media listening a legitimate source of real-world evidence?+

When conducted to a documented protocol with de-identification, ethical safeguards and validated classification, it yields citable insight on burden, treatment experience and unmet need — increasingly accepted in publications and value narratives.

Which platforms and communities do you listen to?+

X/Twitter, Reddit and disease forums, patient community platforms, public Facebook groups, YouTube, podcasts, physician networks and product review sites.

Can social listening support pharmacovigilance?+

Yes — we detect and characterise adverse-event mentions in public conversations to complement, not replace, formal PV processes.

Get in touch

Scope a Social Media Listening & Patient Voice engagement

Share your objectives, timelines and target markets. We respond within one business day with next steps.